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This book explores patient safety themes in developed, developing and transitioning countries. A foundation premise is the concept of `reverse innovation' as mutual learning from the chapters challenges traditional assumptions about the construction and location of knowledge. This edited collection can be seen to facilitate global learning. This book will, ...
Global Patient Safety: Law, Policy and Practice
This book explores patient safety themes in developed, developing and transitioning countries. A foundation premise is the concept of `reverse innovation' as mutual learning from the chapters challenges traditional assumptions about the construction and location of knowledge. This edited collection can be seen to facilitate global learning. This book will, hopefully, form a bridge for those countries seeking to enhance their patient safety policies. Contributors to this book challenge many supposed generalisations about human societies, including consideration of how medical care is mediated within those societies and how patient safety is assured or compromised. By introducing major theories from the developing world in the book, readers are encouraged to reflect on their impact on the patient safety and the health quality debate. The development of practical patient safety policies for wider use is also encouraged. The volume presents a ground-breaking perspective by exploring fundamental issues relating to patient safety through different academic disciplines. It develops the possibility of a new patient safety and health quality synthesis and discourse relevant to all concerned with patient safety and health quality in a global context.
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147.000000 USD
Hardback
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Colin Farrelly contemplates the various ethical and social quandaries raised by the genetic revolution. Recent biomedical advances such as genetic screening, gene therapy and genome editing might be used to promote equality of opportunity, reproductive freedom, healthy aging, and the prevention and treatment of disease. But these technologies also raise ...
Genetic Ethics: An Introduction
Colin Farrelly contemplates the various ethical and social quandaries raised by the genetic revolution. Recent biomedical advances such as genetic screening, gene therapy and genome editing might be used to promote equality of opportunity, reproductive freedom, healthy aging, and the prevention and treatment of disease. But these technologies also raise a host of ethical questions: Is the idea of genetically engineering humans a morally objectionable form of eugenics? Should parents undergoing IVF be permitted to screen embryos for the sex of their offspring? Would it be ethical to alter the rate at which humans age, greatly increasing longevity at a time when the human population is already at potentially unsustainable levels? Farrelly applies an original virtue ethics framework to assess these and other challenges posed by the genetic revolution. Chapters discuss virtue ethics in relation to eugenics, infectious and chronic disease, evolutionary biology, epigenetics, happiness, reproductive freedom and longevity. This fresh approach creates a roadmap for thinking ethically about technological progress that will be of practical use to ethicists and scientists for years to come. Accessible in tone and compellingly argued, this book is an ideal introduction for students of bioethics, applied ethics, biomedical sciences, and related courses in philosophy and life sciences.
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28.99 USD

Genetic Ethics: An Introduction

by Colin Farrelly
Paperback / softback
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An examination of the ethical issues raised by the possibility of human life extension, including its desirability, unequal access, and the threat of overpopulation. Life extension-slowing or halting human aging-is now being taken seriously by many scientists. Although no techniques to slow human aging yet exist, researchers have successfully slowed ...
New Methuselahs: The Ethics of Life Extension
An examination of the ethical issues raised by the possibility of human life extension, including its desirability, unequal access, and the threat of overpopulation. Life extension-slowing or halting human aging-is now being taken seriously by many scientists. Although no techniques to slow human aging yet exist, researchers have successfully slowed aging in yeast, mice, and fruit flies, and have determined that humans share aging-related genes with these species. In New Methuselahs, John Davis offers a philosophical discussion of the ethical issues raised by the possibility of human life extension. Why consider these issues now, before human life extension is a reality? Davis points out that, even today, we are making policy and funding decisions about human life extension research that have ethical implications. With New Methuselahs, he provides a comprehensive guide to these issues, offering policy recommendations and a qualified defense of life extension. After an overview of the ethics and science of life extension, Davis considers such issues as the desirability of extended life; whether refusing extended life is a form of suicide; the Malthusian threat of overpopulation; equal access to life extension; and life extension and the right against harm. In the end, Davis sides neither with those who argue that there are no moral objections to life enhancement nor with those who argue that the moral objections are so strong that we should never develop it. Davis argues that life extension is, on balance, a good thing and that we should fund life extension research aggressively, and he proposes a feasible and just policy for preventing an overpopulation crisis.
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42.000000 USD

New Methuselahs: The Ethics of Life Extension

by John K Davis
Hardback
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Medicines, Ethics and Practice: The professional guide for pharmacists is the Royal Pharmaceutical Society's established professional guide for pharmacists. This 42nd edition is a revised practical resource which helps pharmacists practice confidently and professionally. It embeds professionalism at the heart of decision-making processes and provides essential information, supporting the pharmacist ...
Medicines, Ethics and Practice 2018: The professional guide for pharmacists
Medicines, Ethics and Practice: The professional guide for pharmacists is the Royal Pharmaceutical Society's established professional guide for pharmacists. This 42nd edition is a revised practical resource which helps pharmacists practice confidently and professionally. It embeds professionalism at the heart of decision-making processes and provides essential information, supporting the pharmacist in their day-to-day practice.
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93.85 USD

Medicines, Ethics and Practice 2018: The professional guide for pharmacists

by Royal Pharmaceutical Society
Paperback / softback
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This book discusses feature films that enrich our understanding of doctor-patient dilemmas. The book comprises general clinical ethics themes and principles and is written in accessible language. Each theme is discussed and illuminated in chapters devoted to a particular film. Chapters start with a discussion of the film itself, which ...
Clinical Ethics on Film: A Guide for Medical Educators
This book discusses feature films that enrich our understanding of doctor-patient dilemmas. The book comprises general clinical ethics themes and principles and is written in accessible language. Each theme is discussed and illuminated in chapters devoted to a particular film. Chapters start with a discussion of the film itself, which shares details behind the making of the film; box-office and critical reception; casting; and other facts about production. The chapter then situates the film in a history of medicine and medical sociology context before it delves into the clinical ethics issues in the film, and how to use it as a teaching aid for clinical ethics. Readers will understand how each film in this collection served to bring particular clinical ethics issues to the public's attention or reflected medico-legal issues that were part of the public discourse. The book is a perfect instructor's guide for anyone teaching bioethics, healthcare ethics, medical sociology, medical history, healthcare systems, narrative medicine, or nursing ethics.
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78.740000 USD

Clinical Ethics on Film: A Guide for Medical Educators

by M Sara Rosenthal
Hardback
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This book clarifies the meaning of the most important and pervasive concepts and tools in bioethical argumentation (principles, values, dignity, rights, duties, deliberation, prudence) and assesses the methodological suitability of the main methods for clinical decision-making and argumentation. The first part of the book is devoted to the most developed ...
Bioethical Decision Making and Argumentation
This book clarifies the meaning of the most important and pervasive concepts and tools in bioethical argumentation (principles, values, dignity, rights, duties, deliberation, prudence) and assesses the methodological suitability of the main methods for clinical decision-making and argumentation. The first part of the book is devoted to the most developed or promising approaches regarding bioethical argumentation, namely those based on principles, values and human rights. The authors then continue to deal with the contributions and shortcomings of these approaches and suggest further developments by means of substantive and procedural elements and concepts from practical philosophy, normative systems theory, theory of action, human rights and legal argumentation. Furthermore, new models of biomedical and health care decision-making, which overcome the aforementioned criticism and stress the relevance of the argumentative responsibility, are included.
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115.490000 USD

Bioethical Decision Making and Argumentation

Paperback / softback
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This book addresses the problem of how to make democratically-legitimate public policy on issues of contentious bioethical debate. It focuses on ethical contests about research and their legitimate resolution, while addressing questions of political legitimacy. How should states make public policy on issues where there is ethical disagreement, not only ...
Big Picture Bioethics: Developing Democratic Policy in Contested Domains
This book addresses the problem of how to make democratically-legitimate public policy on issues of contentious bioethical debate. It focuses on ethical contests about research and their legitimate resolution, while addressing questions of political legitimacy. How should states make public policy on issues where there is ethical disagreement, not only about appropriate outcomes, but even what values are at stake? What constitutes justified, democratic policy in such conflicted domains? Case studies from Canada and Australia demonstrate that two countries sharing historical and institutional characteristics can reach different policy responses. This book is of interest to policymakers, bioethicists, and philosophers, and will deepen our understanding of the interactions between large-scale socio-political forces and detailed policy problems in bioethics. asdf
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125.990000 USD

Big Picture Bioethics: Developing Democratic Policy in Contested Domains

Paperback / softback
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This book offers a theoretical and practical overview of the specific ethical and legal issues in pediatric organ transplantation. Written by a team of leading experts, Ethical Issues in Pediatric Organ Transplantation addresses those difficult ethical questions concerning clinical, organizational, legal and policy issues including donor, recipient and allocation issues. ...
Ethical Issues in Pediatric Organ Transplantation
This book offers a theoretical and practical overview of the specific ethical and legal issues in pediatric organ transplantation. Written by a team of leading experts, Ethical Issues in Pediatric Organ Transplantation addresses those difficult ethical questions concerning clinical, organizational, legal and policy issues including donor, recipient and allocation issues. Challenging topics, including children as donors, donation after cardiac death, misattributed paternity, familial conflicts of interest, developmental disability as a listing criteria, small bowel transplant, and considerations in navigating the media are discussed. It serves as a fundamental handbook and resource for pediatricians, transplant health care professionals, trainees, graduate students, scholars, practitioners of bioethics and health policy makers.
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146.990000 USD

Ethical Issues in Pediatric Organ Transplantation

Paperback / softback
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In this book, scholars with different disciplinary and national backgrounds argue for possible answers and analyse case studies on current issues of governance in biomedical research. These issues comprise among others the research-care distinction, risk evaluation in early human trials, handling of incidental findings, nocebo effects, cluster randomized trials, publication ...
Ethics and Governance of Biomedical Research: Theory and Practice
In this book, scholars with different disciplinary and national backgrounds argue for possible answers and analyse case studies on current issues of governance in biomedical research. These issues comprise among others the research-care distinction, risk evaluation in early human trials, handling of incidental findings, nocebo effects, cluster randomized trials, publication bias, or consent in biobank research. This book demonstrates how new technologies and research possibilities multiply or intensify already known governance challenges, leaving room for ethical analysis and complex moral choices. Clinical researchers, research ethics committee members and research ethicists have all to deal with such challenges on a daily basis. While general reflection on core concepts of research ethics is seldom pointless, those confronted with hard moral choices do need more practical and contextualized reflection on the said issues. This book particularly provides such contextualized reflections and aims to inform all those who study, conduct, regulate, fund, or participate in biomedical research.
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125.990000 USD

Ethics and Governance of Biomedical Research: Theory and Practice

Paperback / softback
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This book offers a comprehensive and unitary study of the philosophy of Francis Bacon, with special emphasis on the medical, ethical and political aspects of his thought. It presents an original interpretation focused on the material conditions of nature and human life. In particular, coverage in the book is organized ...
Francis Bacon on Motion and Power
This book offers a comprehensive and unitary study of the philosophy of Francis Bacon, with special emphasis on the medical, ethical and political aspects of his thought. It presents an original interpretation focused on the material conditions of nature and human life. In particular, coverage in the book is organized around the unifying theme of Bacon's notion of appetite, which is considered in its natural, ethical, medical and political meanings. The book redefines the notions of experience and experiment in Bacon's philosophy of nature, shows the important presence of Stoic themes in his work as well as provides an original discussion of the relationships between natural magic, prudence and political realism in his philosophy. Bringing together scholarly expertise from the history of philosophy, the history of science and the history of literature, this book presents readers with a rich and diverse contextualization of Bacon's philosophy.
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167.990000 USD

Francis Bacon on Motion and Power

Paperback / softback
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THE SUNDAY TIMES NO.1 BESTSELLER Henry Marsh has spent four decades operating on the human brain. In this searing and provocative memoir following his retirement from the NHS, he reflects on the experiences that have shaped his career and life, gaining a deeper understanding of what matters to us all ...
Admissions: A Life in Brain Surgery

THE SUNDAY TIMES NO.1 BESTSELLER Henry Marsh has spent four decades operating on the human brain. In this searing and provocative memoir following his retirement from the NHS, he reflects on the experiences that have shaped his career and life, gaining a deeper understanding of what matters to us all in the end.

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14.18 USD

Admissions: A Life in Brain Surgery

by Henry Marsh
Paperback / softback
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Scarlet A: The Ethics, Law, and Politics of Ordinary Abortion
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41.990000 USD

Scarlet A: The Ethics, Law, and Politics of Ordinary Abortion

by Katie Watson
CD-Audio
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Medicine, Money, and Malice
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17.800000 USD

Medicine, Money, and Malice

by Edna Carpenter on Behalf of the Team
Paperback
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Infertility Treatments
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42.000000 USD

Infertility Treatments

by Janice Arenofsky
Hardback
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The Neutrality Exercise Workbook - The Birthing Parent
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29.400000 USD

The Neutrality Exercise Workbook - The Birthing Parent

by Nekole Malia Shapiro
Paperback
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Synthetic biology is a dynamic, young, ambitious, attractive, and heterogeneous scientific discipline. It is constantly developing and changing, which makes societal evaluation of this emerging new science a challenging task, prone to misunderstandings. Synthetic biology is difficult to capture, and confusion arises not only regarding which part of synthetic biology ...
Synthetic Biology Analysed: Tools for Discussion and Evaluation
Synthetic biology is a dynamic, young, ambitious, attractive, and heterogeneous scientific discipline. It is constantly developing and changing, which makes societal evaluation of this emerging new science a challenging task, prone to misunderstandings. Synthetic biology is difficult to capture, and confusion arises not only regarding which part of synthetic biology the discussion is about, but also with respect to the underlying concepts in use. This book offers a useful toolbox to approach this complex and fragmented field. It provides a biological access to the discussion using a 'layer' model that describes the connectivity of synthetic or semisynthetic organisms and cells to the realm of natural organisms derived by evolution.Instead of directly reviewing the field as a whole, firstly our book addresses the characteristic features of synthetic biology that are relevant to the societal discussion. Some of these features apply only to parts of synthetic biology, whereas others are relevant to synthetic biology as a whole. In the next step, these new features are evaluated with respect to the different areas of synthetic biology. Do we have the right words and categories to talk about these new features? In the third step, traditional concepts like life and artificiality are scrutinized with regard to their discriminatory power. This approach may help to differentiate the discussion on synthetic biology. Lastly our refined view is utilized for societal evaluation. We have investigated the public views and attitudes to synthetic biology. It also includes the analysis of ethical, risk and legal questions, posed by present and future practices of synthetic biology.This book contains the results of an interdisciplinary research project and presents the authors' main findings and recommendations. They are addressed to science, industry, politics and the general public interested in this upcoming field of biotechnology.
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89.240000 USD

Synthetic Biology Analysed: Tools for Discussion and Evaluation

Paperback / softback
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Ibclc Private Practice: From Start to Strong
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57.700000 USD

Ibclc Private Practice: From Start to Strong

by Annie Frisbie Ibclc Ma
Paperback / softback
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A Discourse Upon the Duties of a Physician, with Some Sentiments, on the Usefulness and Necessity of a Public Hospital: Delivered Before the President and Governors of King's College
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20.950000 USD

A Discourse Upon the Duties of a Physician, with Some Sentiments, on the Usefulness and Necessity of a Public Hospital: Delivered Before the President and Governors of King's College

by Samuel Bard
Hardback
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Mercies in Disguise: A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them
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17.840000 USD

Mercies in Disguise: A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them

by Gina Kolata
Paperback / softback
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Utilitarianism
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13.640000 USD

Utilitarianism

by John Stuart Mill
Hardback
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Ethical Leadership in Healthcare: Theory & Best Practices
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58.830000 USD

Ethical Leadership in Healthcare: Theory & Best Practices

by Dr Lisa Marie Portugal
Paperback / softback
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The Gene Machine: How Genetic Technologies are Changing the Way We Have Kids--and the Kids We Have
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16.800000 USD

The Gene Machine: How Genetic Technologies are Changing the Way We Have Kids--and the Kids We Have

by Bonnie Rochman
Paperback / softback
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How medical education and practice can move beyond a narrow focus on biological intervention to recognize the lived experiences of illness, suffering, and death. In Afflicted, Nicole Piemonte examines the preoccupation in medicine with cure over care, arguing that the traditional focus on biological intervention keeps medicine from addressing the ...
Afflicted: How Vulnerability Can Heal Medical Education and Practice
How medical education and practice can move beyond a narrow focus on biological intervention to recognize the lived experiences of illness, suffering, and death. In Afflicted, Nicole Piemonte examines the preoccupation in medicine with cure over care, arguing that the traditional focus on biological intervention keeps medicine from addressing the complex realities of patient suffering. Although many have pointed to the lack of compassion and empathy in medical practice, few have considered the deeper philosophical, psychological, and ontological reasons for it. Piemonte fills that gap, examining why it is that clinicians and medical trainees largely evade issues of vulnerability and mortality and, doing so, offer patients compromised care. She argues that contemporary medical pedagogy and epistemology are not only shaped by the human tendency to flee from the reality of death and suffering but also perpetuate it. The root of the problem, she writes, is the educational and institutional culture that promotes reductionist understandings of care, illness, and suffering but avoids any authentic confrontation with human suffering and the fear and self-doubt that can come with that confrontation. Through a philosophical analysis of the patient-practitioner encounter, Piemonte argues that the doctor, in escaping from authentic engagement with a patient who is suffering, in fact escapes from herself. Piemonte explores the epistemology and pedagogy of medicine, examines its focus on calculative or technical thinking, and considers how clinical detachment diminishes physicians. She suggests ways that educators might cultivate the capacity for authentic patient care and proposes specific curricular changes to help students expand their moral imaginations.
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36.750000 USD

Afflicted: How Vulnerability Can Heal Medical Education and Practice

by Nicole M. Piemonte
Hardback
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Artificial hearts are seductive devices. Their promissory nature as a cure for heart failure aligned neatly with the twentieth-century American medical community's view of the body as an entity of replacement parts. In Artificial Hearts, Shelley McKellar traces the controversial history of this imperfect technology beginning in the 1950s and ...
Artificial Hearts: The Allure and Ambivalence of a Controversial Medical Technology
Artificial hearts are seductive devices. Their promissory nature as a cure for heart failure aligned neatly with the twentieth-century American medical community's view of the body as an entity of replacement parts. In Artificial Hearts, Shelley McKellar traces the controversial history of this imperfect technology beginning in the 1950s and leading up to the present day. McKellar profiles generations of researchers and devices as she traces the heart's development and clinical use. She situates the events of Dr. Michael DeBakey and Dr. Denton Cooley's professional fall-out after the first artificial heart implant case in 1969, as well as the 1982-83 Jarvik-7 heart implant case of Barney Clark, within a larger historical trajectory. She explores how some individuals-like former US Vice President Dick Cheney-affected the public profile of this technology by choosing to be implanted with artificial hearts. Finally, she explains the varied physical experiences, both negative and positive, of numerous artificial heart recipients. McKellar argues that desirability-rather than the feasibility or practicality of artificial hearts-drove the invention of the device. Technical challenges and unsettling clinical experiences produced an ambivalence toward its continued development by many researchers, clinicians, politicians, bioethicists, and the public. But the potential and promise of the artificial heart offset this ambivalence, influencing how success was characterized and by whom. Packed with larger-than-life characters-from dedicated and ardent scientists to feuding Texas surgeons and brave patients-this book is a fascinating case study that speaks to questions of expectations, limitations, and uncertainty in a high-technology medical world.
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69.10 USD

Artificial Hearts: The Allure and Ambivalence of a Controversial Medical Technology

by Shelley McKellar
Hardback
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This book presents a straightforward, step-by-step protocol for mental health professionals who evaluate child custody cases.Child custody disputes are complicated. For psychologists and others starting their careers in forensic custody assessments, the multitude of legal, ethical, and clinical issues can be daunting, and the risk of causing emotional injury is ...
Family Evaluation in Custody Litigation: Promoting Optimal Outcomes and Reducing Ethical Risks
This book presents a straightforward, step-by-step protocol for mental health professionals who evaluate child custody cases.Child custody disputes are complicated. For psychologists and others starting their careers in forensic custody assessments, the multitude of legal, ethical, and clinical issues can be daunting, and the risk of causing emotional injury is real.This book explains the complex judicial and legal requirements of child custody evaluations. The authors review the legal evidentiary standards that pertain to psychological testing, scientific evidence, and the expert witness testimony used in the court system. Most importantly, they present a clear, step-by-step evaluation protocol that has been used successfully in thousands of cases for over fifteen years, and has been demonstrated to minimize the risk of suits or complaints. Useful for novice and seasoned evaluators alike, this new edition adheres to updated principles of procedural justice, and reflects the latest in standards of fairness, objectivity, and transparency.
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73.450000 USD

Family Evaluation in Custody Litigation: Promoting Optimal Outcomes and Reducing Ethical Risks

by Robert A. Geffner, Morgan Shaw, Connie J.A. Beck, G. Andrew H. Benjamin
Hardback
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Medical interventions have become the third leading cause of death in America, killing more Americans each year than diabetes, murders, car accidents and AIDS combined. In THE DANGER WITHIN US, award-winning journalist Jeanne Lenzer brings this horrifying statistic to life through the story of one working class man who, after ...
The Danger Within Us: America's Untested, Unregulated Medical Device Industry and One Man's Battle to Survive It
Medical interventions have become the third leading cause of death in America, killing more Americans each year than diabetes, murders, car accidents and AIDS combined. In THE DANGER WITHIN US, award-winning journalist Jeanne Lenzer brings this horrifying statistic to life through the story of one working class man who, after his cure nearly kills him, ends up in a battle for justice against the medical establishment. His crusade leads Lenzer on a journey through the dark underbelly of the medical device industry, a fascinating and disturbing world that hasn't been written about before. What Lenzer exposes will shock readers: rampant corruption, elaborate cover-ups, shameless profiteering and astonishing lack of oversight, all of which leads to dangerous devices (from artificial hips to pacemakers) going to market and into our bodies. In the vein of America's Bitter Pill and A Civil Action, THE DANGER WITHIN US is a meticulously researched and propulsive read that will fill you with anger and indignation, a stirring call for reform, and a must-read for anyone who cares about the future of American healthcare.
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29.400000 USD

The Danger Within Us: America's Untested, Unregulated Medical Device Industry and One Man's Battle to Survive It

by Jeanne Lenzer
Hardback
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The third edition of Doing Right: A Practical Guide to Ethics for Medical Trainees and Physicians is a practical guide to analyzing and resolving the ethical dilemmas medical practitioners face on a day-to-day basis. Drawing extensively on real-life scenarios, this book takes a case-based approach to provide students and practitioners ...
Doing Right: A Practical Guide to Ethics for Medical Trainees and Physicians
The third edition of Doing Right: A Practical Guide to Ethics for Medical Trainees and Physicians is a practical guide to analyzing and resolving the ethical dilemmas medical practitioners face on a day-to-day basis. Drawing extensively on real-life scenarios, this book takes a case-based approach to provide students and practitioners with the advice and skills they need to help their patients and overcome ethical challenges in the field. Fully revised to include up-to-date coverage of such important topics as patient-practitioner relationships in the digital age and advances in reproductive medicine and reproductive technologies, this third edition of Doing Right will provide readers with the most up-to-date guidebook to medical ethics available.
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82.69 USD

Doing Right: A Practical Guide to Ethics for Medical Trainees and Physicians

by Philip C. Hebert
Paperback
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THE NEW YORK TIMES NUMBER ONE BESTSELLER BBC RADIO 4 BOOK OF THE WEEK The Gene is the story of one of the most powerful and dangerous ideas in our history, from bestselling, prize-winning author Siddhartha Mukherjee. Spanning the globe and several centuries, The Gene is the story of the ...
The Gene: An Intimate History
THE NEW YORK TIMES NUMBER ONE BESTSELLER BBC RADIO 4 BOOK OF THE WEEK The Gene is the story of one of the most powerful and dangerous ideas in our history, from bestselling, prize-winning author Siddhartha Mukherjee. Spanning the globe and several centuries, The Gene is the story of the quest to decipher the master-code that makes and defines humans, that governs our form and function. The story of the gene begins in an obscure Augustinian abbey in Moravia in 1856 where a monk stumbles on the idea of a `unit of heredity'. It intersects with Darwin's theory of evolution, and collides with the horrors of Nazi eugenics in the 1940s. The gene transforms post-war biology. It reorganizes our understanding of sexuality, temperament, choice and free will. This is a story driven by human ingenuity and obsessive minds - from Charles Darwin and Gregor Mendel to Francis Crick, James Watson and Rosalind Franklin, and the thousands of scientists still working to understand the code of codes. This is an epic, moving history of a scientific idea coming to life, by the author of The Emperor of All Maladies. But woven through The Gene, like a red line, is also an intimate history - the story of Mukherjee's own family and its recurring pattern of mental illness, reminding us that genetics is vitally relevant to everyday lives. These concerns reverberate even more urgently today as we learn to read and write the human genome - unleashing the potential to change the fates and identities of our children. Majestic in its ambition, and unflinching in its honesty, The Gene gives us a definitive account of the fundamental unit of heredity - and a vision of both humanity's past and future.
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6.56 USD

The Gene: An Intimate History

by Siddhartha Mukherjee
Paperback / softback
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Parents who care for children with special needs, particularly those whose children have multiple disabilities or intellectual delays, are pioneers in home health care and caregiving, yet their experience and expertise are rarely recognized. This book collects parent narratives, personal experience, and academic research to portray the lives of parent ...
Extreme Caregiving: The Moral Work of Raising Children with Special Needs
Parents who care for children with special needs, particularly those whose children have multiple disabilities or intellectual delays, are pioneers in home health care and caregiving, yet their experience and expertise are rarely recognized. This book collects parent narratives, personal experience, and academic research to portray the lives of parent caregivers, looking at both the trials and the triumphs inherent in raising a child with special needs. Parents raising children with special needs often must devote all of their resources, both tangible and spiritual, to providing care long into their offspring's lives. Their experience exceeds the usual parameters of parenting. This book examines all of the facets of their parenting role, the care they provide, challenges they face, and questions many assumptions. It presents parents as neither emotional wrecks nor overburdened saints, but as moral individuals struggling to find their own way through relatively unexplored territory. This book begins to recognize the moral consequences of providing long-term care for a child with complex needs. Using a virtue ethic framework isolates the various tasks involved, and evaluates the moral demands placed on the parent attempting to perform them. On their journey to provide for their child the best life possible, parents must alter their own lives and attitudes, and become the sort of person who can perform the necessary caregiving. Raising a child with special needs demands from the parent a reassessment of their personal and social lives. Some of the consequences, such as the presumed emotional and physical burden of constant attentiveness and the numerous unexpected responsibilities, have been reported previously. But the need for competence, which drives an acquisition of medical knowledge, has not previously been analyzed, nor has there been recognition of the enormous moral task of encouraging identity formation in a child with intellectual delays or disabilities. For a child who cannot attain independence, parents must continue to provide care and support into an uncertain future.
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36.750000 USD

Extreme Caregiving: The Moral Work of Raising Children with Special Needs

by Lisa Freitag
Paperback
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